Needs: quality of life

spinal cord injured child and mother

In 2012, Back Up, working together with Aspire and the Spinal Injuries Association, sought to develop our knowledge of the needs of people with spinal cord injury in the UK today, so that we can better plan and develop our services.  We wanted to understand first, what is known from existing studies about the quality of life of people with spinal cord injury?

We are incredibly grateful to Brett Smith and his expert research team from the Peter Harrison Centre for Disability Sport at Loughborough University for very kindly volunteering to support us, working on their own time to make it happen.

The team reviewed over 200 published papers. They found that the key themes affecting the quality of life of spinal cord injured people have been found to be:
• Environment (accessible homes)
• Relationships
• Physical body (e.g. pain)
• Control (e.g. of the body)
• Occupation / Finance
• Identity
• Growth (e.g. having a meaningful life)
• Mental (e.g. resilience)
• Physical activity and sport
• Narrative (e.g. the type of story told)
• Individual variables (e.g. age)

They found that more research is clearly needed to evidence what will best promote the quality of life of people with spinal cord injury.  Please read their report by clicking on the links below.

Quality of Life summary 

Quality of Life full report 

For further information, please contact Stef by email or phone 020 8875 6745